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LIVE. LOVE. LIFE. supports brain disease research and brain donation.

In Loving Memory

Barbara J Monzures
7.20.33 – 10.6.13

LIVE. LOVE. LIFE. founder Jane Monzures watched her mother, Barbara Monzures, suffer from a rare degenerative brain disease which ultimately took her life. After spending her life in the medical field as an RN, Barbara’s desire was always to donate her brain for research to help find answers and hopefully help others.

In 2010 Barbara was diagnosed with Corticobasal Syndrome but after her brain autopsy and the pathology report came back, it was determined that she suffered from PICK Disease which caused her Corticobasal Syndrome. Jane watched her mother suffer with this awful disease while keeping her dignity and pride. It doesn’t matter which degenerative brain disease a person has they a lot; they lose mobility, cognitive function, the ability to do the things they love most, and also their independence. Today, there are no drugs specific to these degenerative brain diseases and there is no cure for brain degeneration but thru brain donation and research someday there will be answers.

A rare brain disease is not limited to corticobasal syndrome; it can include Alzheimer’s disease, Parkinson’s disease, and more. About 8-9 diseases are associated with tau protein (known as tauopathies). Tauopathies refer to a group of neurodegenerative diseases associated with brain pathologies containing the tau protein. Tauopathies include Alzheimer’s disease, frontotemporal lobar degeneration, Pick’s disease, corticobasal degeneration, Argyrophilic grain disease, Lytico-Bodig disease, progressive supranuclear palsy, Subacute sclerosing panencephalitis, Dementia pugilistic and other rare diseases. Some of these diseases may co-exist in the same patient and many of the tauopathies are not rare.

Northwestern Memorial Foundation raises funds that support the mission and strategic goals of Northwestern Memorial Hospital, Northwestern Lake Forest Hospital and Northwestern University Feinberg School of Medicine. Through fundraising, grant making and stewardship, the foundation perpetuates a dedication to clinical innovation, scientific discovery and improving the health of our community.

Northwestern Memorial Hospital is one of the country’s premier academic medical centers and is the primary teaching hospital of the Northwestern University Feinberg School of Medicine. One of Northwestern Memorial’s distinguishing strengths is its ability to treat a full range of neurological disorders, including Parkinson’s Disease and an array of Movement Disorders.

In 2000, Northwestern launched the Parkinson’s Disease & Movement Disorders Center to provide comprehensive multidisciplinary care to patients with Parkinson’s disease (PD) and other movement disorders while working on research into the cause and cure of PD. Momentous strides are being made to advance groundbreaking research and innovative patient care. You can easily support the program’s initiatives by making a gift online at http://foundation.nmh.org/giving.

Northwestern Medicine ranks among the nation’s leaders in neurology for clinical care, teaching and research, and its residencies and fellowships offered in neuroradiology, neurosurgery and neurology are among the largest and most competitive in Illinois.